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BonsaiForest Since: Jan, 2001
#2876: Nov 24th 2017 at 8:33:44 PM

Yup. I've talked to people where I have shared interests in common, but I just don't "click" at all. One might think that I would. But it just doesn't work that way.

I can talk to my online friend about a lot of things, but when it comes to shared interests, there's like... almost nothing. And yet, I feel closer to her than I had to anyone else before.

BonsaiForest Since: Jan, 2001
#2877: Dec 2nd 2017 at 8:47:44 AM

In the Aspie Troper Discord (link in my sig), 6 people expressed interest in a "movie night", where we'd watch The Accountant in a chatroom, and talk about the movie and its portrayal of autism in the process. The movie, btw, is about an assassin on the autism spectrum who also happens to be an accountant as his day job. It has its aspects I really like, and its aspects that some people find problematic.

Anyway, the idea is to watch the movie and chat about it.

When I mentioned this to the guy who runs the Troper Coven movie group (link to the thread here: https://tvtropes.org/pmwiki/posts.php?discussion=13456679170A21340100&page=783 ), he asked me, why not just invite everyone to his group and have his group host the movie?

After chatting on the Aspie Troper Discord channel, it ultimately seemed like Saturday, December 9, at 8pm US Eastern time was the time that worked out for the most people. The Synchtube/Cytube Troper Coven will host the movie (I'm a moderator there), and we can jump in. Anyone is able to join at any time. Even if you were unaware of the movie night because you weren't in the Discord channel, you can still join.

A couple things.

The website the movie will be hosted at is here: https://cytu.be/r/TroperCoven - Anyone can hop in and watch whatever is being shown. At any time, even when they're not hosting our movie night.

The movie will run off of Google Drive, and a plugin is needed in order to be able to view it. You must get the plugin here: https://cytu.be/google_drive_userscript

EDIT: Because of the movie's length, it will instead be starting at 7:30pm US Eastern Time, and again, it's still on Saturday, December 9.

Remember, anyone is allowed to join even if you never mentioned it ahead of time. Stop on in next weekend and check it out!

edited 2nd Dec '17 10:57:07 AM by BonsaiForest

BonsaiForest Since: Jan, 2001
#2878: Dec 9th 2017 at 4:00:46 PM

MOVIE NIGHT STARTS NOW. The movie itself beings in a half hour, but the pre-show starts now. It's at https://cytu.be/r/TroperCoven

BonsaiForest Since: Jan, 2001
#2879: Feb 13th 2018 at 8:01:49 AM

Since this is a troper coven and not a serious discussion thread, that means we can talk about whatever, right?

Here's a list of all the strange dreams I had. That I was able to remember upon waking up, and quickly get to type up.

BonsaiForest Since: Jan, 2001
#2880: Feb 13th 2018 at 8:57:07 PM

When we did our movie night with The Accountant, 6 people expressed interest. Then 2 said they couldn't make it, and on the night itself, 2 more didn't show up, leaving 2 left. (The group was also combined with the main troper movie group, so there were other people watching it with us as well.)

I'm gonna try again with another movie. Please Stand By. I saw it and I liked it, and I'd love to share it with anyone who'd like to see it. We'd have to find a time that could work for a bunch of us. Anyone interested?

PhysicalStamina Since: Apr, 2012
#2881: Feb 18th 2018 at 7:32:14 AM

I'd say yes, but I can't guarantee I'll remember.

BonsaiForest Since: Jan, 2001
#2882: Feb 19th 2018 at 12:37:18 PM

We'd have to find a good time for this movie as well. It would be great if you could come.


Editorial on how the average age of death for autistics is 36, and the reasons why. Besides health problems and children dying of drowning after wandering away from home, there's also the sheer stress autism takes on a person.

I’m tired all the time. The coping mechanisms that I developed as a bullied and undiagnosed child — from learning to mimic the behaviors of people who are more naturally likable than me to holding entire conversations where I reveal nothing about myself for fear of being too enthusiastic, too annoying, too overbearing, or simply too much — are not great for managing a remotely healthy life or building self-esteem. The effort it takes to fit in is increasingly exhausting as I get older.

All that hard work to make other people more comfortable around me feels more and more pointless. I appreciate that I have people in my life who have assured me that I can just be myself, but unlearning almost 36 years of shitty coping mechanisms and performances also takes a buttload of work.

I repeatedly have to tell people I’m not a math savant. I’m tired of watching people who aren’t on the spectrum tell shitty versions of our stories while I can’t find the funding or the audience to tell my own. I’m tired of watching people get feels and inspiration from shows like The Good Doctor while they can’t seem to give a shit about autistic people in real life.

In the video of my childhood, I'm told to stop my imagination play (at age 8) and to look people in the eye (at age 9).

If you want to understand people on the spectrum, I’d recommend starting with some of the following: Listen to us. Invest in our work. Invest in science and actions that actually make our lives better now instead of chasing a hypothetical cure. Don’t kill us. Think twice about sympathizing with the parents who do kill us. Don’t rush to armchair-diagnose every mass murderer with autism — like what happened with the most recent Florida school shooting. Give your money to marginalized autistic people instead of charities like Autism Speaks, which dedicate only a small percentage of their budget to programs that will actually help autistic people. Think about how hard we’re working to exist in your world and consider meeting us halfway.

Tell us we don’t bore you. Tell us we don’t drain you. Look at us somewhere other than the eyes — we’re really not comfortable with eye contact and are tired of being forced to make it for your benefit — and tell us that we deserve to be alive.

BonsaiForest Since: Jan, 2001
#2883: Feb 20th 2018 at 4:11:50 PM

About the concept of "assigned friends", where people are asked to sit with the unpopular, uncool, or disabled kids at school, here are three very different thoughts on it:

We’ve set up a buddy program at our K-4 school. In our school we have two classes for students with autism that need extra support and 19 classes of students from the neighborhood. Most of the students in the two special ed classes are low verbal. All students from grades 3 and 4 have been invited to join our classes for recess in our classrooms.

We deliberately did not assign any friendships but have encouraged interactions through play. The comment I hear most often from our buddies about why they choose to come is because “it is fun”. We have lots of break out spaces so our students can safely opt out at any time if they are feeling stressed or overwhelmed. More and more students from both groups are finding ways to have fun together. It’s been a pleasure to watch as relationships slowly develop.

As a mother of a daughter with down syndrome who is in middle school, I find myself desperate to help her make connections. She just finished up 6th grade and does not have a single friend. This is so disheartening to me. She does have a lunch group on Tuesdays, but unfortunately, nothing genuine has come from that. The other girls do their “good deed” for the week, and that’s as far as it goes. I hope one day you will write about making true connections/friendships and what that looks like for someone who just doesn’t fit perfectly into the NT world!!!!

I have often wondered about this type of program. My son, who is not as socially aware as you are, felt great about his “assigned friends,” and never wondered why they were there or why they disappeared. I always felt uncomfortable because it seemed disrespectful — but figured “if my son is comfortable, then I should just get over it!”

What do you think of the "assigned friends" concept? My online friend said that when she was a kid, her parents tried to get her to be friends with this other autistic kid (whose autism was more overtly obvious than hers), and they were friends for a while, until he naturally drifted away. It wasn't a natural friendship that developed on its own, and it fizzled out on its own.

Do you think the concept of "assigned friends" harms natural friendships? Do you think it helps? Do you think that for some people, who otherwise wouldn't have any friends at all, it's at least preferable to nothing?

acuddle Inconvenience from Blagnac, France Since: Sep, 2015 Relationship Status: It's not my fault I'm not popular!
Inconvenience
#2884: Mar 11th 2018 at 12:21:05 PM

The main problem is in the very definition of autism. I always feel that some people diagnosed as autistic are actually less autistic than some people that aren't, and our solipsistic society does actually discourage communication and cognizance of friendship-links, so it is mostly helpful for social people to try to put less socially apt people together if they feel those people are connected. However, assigning them at random tends to be harmful: assigning friends is as harmful as the ratio between similar or compatible attributes to other attributes, so, as harmful as the lack of effort put into analyzing the pairing. But the "tends to" is significant, as people have a lot more hidden tastes and attributes than visible ones. So trying to introduce an autistic person to 2 to 4 friends is much more efficient as one or two may be interesting to her.

Another important things is that, when someone is alone, autistic or not, sometimes that someone needs to understand the need for otherkind, who are the only ones that can dispense love, and the only ones who can make that someone live, as total autonomy is an illusion. In other words, understanding the ramifications and consequences of being autistic, consciously or not, may or will allow for an healing process to happen. I think that happened for me when I was 12-13 by simply watching Amélie alongside an educatrix and another mentally-ill girl. Then I started hugging girls and making friends along them, then some years later started feeling others' emotions.

Autists do not get natural urges for being interested in others when they "should" be (there's where most of the handicap is), but logical thought still apply to them, so if they discover a logical path to be interested in others, then they will get interested in others and it will feel like some kind of liberation to them, and from the "limits" previously imposed by the handicap smile.

In the video of my childhood, I'm told to stop my imagination play (at age 8) and to look people in the eye (at age 9).
[up][up]Also, to heal a mind and soul, one shouldn't demolish it's house, nor its windows. So trying to destroy ones' imaginary world and forcing eye contact is not good at all. Good idea to resist against such intrusion !

From my perspective, to get rid of the eye contact problem, I feel I should work intimately with someone I'd trust enough to look in the eye without feeling bad, so to begin that work and search for an answer to the question of eye contact, I'd need to begin by being a friend to that someone. So that someone, like all other people I interact with, will just have to accept that quirk.

I have often wondered about this type of program. My son, who is not as socially aware as you are, felt great about his “assigned friends,” and never wondered why they were there or why they disappeared. I always felt uncomfortable because it seemed disrespectful — but figured “if my son is comfortable, then I should just get over it!”
It isn't that comfortable a feeling, but it happened most of the time before I was 25: when a friend disappeared, I just rationalized it as a fact of life, an ordinary happening, as, well, friends are other people, who think other things than me and are free to do things their way. Is this good or bad ? I have no clue. If I tried to "stick" to him, it would be nice to see him again, but at the same time, do we have to impose our desire of being with him again to his life plans ? I'd even assume the same rationalization for enemies...
KIM: It never made any sense to me as to why people would be mean to somebody else. Why would you be mean to somebody? And what I saw is that when the two employees were there and were talking together and then were giving Frank a hard time, the primary thing was not that they were trying to be mean to Frank.

The primary thing is that they were bonding, building a bond between the two of them. And it was simply the means to do it was to be nasty to Frank. And then I was like, oh, maybe that's what these kids were doing when they were bullying me.

...we sometimes do not understand the urge of being someone's enemy as that someone, being someone else, has the right to do what he wants of his life, and so, could be able to ignore us, like we are able to ignore him. The "sticking" thing and the "being mean" thing have in common the ideas of disruption and impact. Those things are... social things, and while we refrain to do those things, other people happen to be interested more or less forceful impacts, corresponding to their "interests" (the more forceful it feels the more evil it feels). Now that I've calmed from puberty and other events (involving a girl explaining how disgusted she felt when I gushed over her on her blog comments), I tend to hug less and less, impacts feeling more and more disruptive and thus awkward and it bugs me as people tend to not give enough feedback about that subtle change sad.

Sorry for the wall of text smile !

Sorry for any inconvenience I've caused by ever writing here.
BonsaiForest Since: Jan, 2001
#2885: Mar 31st 2018 at 8:24:27 PM

Yeah. It is the reason why we are different, period. Autistics are always different from most people, period.

I too can't imagine how allistics view the world. It's utterly alien to me. Things like loving wild parties, getting really into subcultures like music subcultures (whereas for autistics, it tends to be about the music itself, not the subculture surrounding it), adapting societal beliefs instantly like "men who have lots of sex are heroes but women who have lots of sex are sluts" just because... because! Yeah, allism is totally alien thinking to me.

Just wanted to pass this on. This was said in reference to someone saying that they can't even imagine how non-autistics (allistics) think.

BonsaiForest Since: Jan, 2001
#2886: Apr 7th 2018 at 10:44:09 PM

Going through this thread is driving me crazy. I remember the last time we had one like this, and the top comment said something like, "Being autistic is like being in a play where everyone has the script except you." And then all of Reddit thought they had autism.

If sand in your shoes makes you uncomfortable, then you're just like everyone else. If sand in your shoes makes you spasm and affects your ability to function, you might be autistic.

If eye contact is a "weird" concept that you don't quite understand, then it's not a big deal. If eye contact is something that you have physical difficulty maintaining and it impairs your ability to hold a conversation, then you might have autism.

If you think a social custom doesn't make sense and is inconvenient, then who cares. If a normal social custom that the vast majority of your peers find no difficulty navigating consistently trips you up and causes you grief and anxiety, then you might be autistic.

From Reddit.

Indeed, people thinking they're autistic because they're nerds with poor social skills, I've heard of that happening. And I've heard of autistics having no idea that they have it, because they don't fit the stereotype, and they grow up for the longest time not knowing why they're constantly socially rejected. It can go in either direction.

Murataku Jer gets all the girls from Straya Since: Jan, 2015 Relationship Status: Who needs love when you have waffles?
Jer gets all the girls
#2887: Apr 14th 2018 at 3:45:10 AM

I actually spent the longest time refusing to call myself autistic. I'd accept Asperger's used on me, but not Autistic. The reason being the only kid I knew who people used the autistic label for growing up was, and I'm afraid I don't know how to phrase this kindly, very stereotypically autistic. He didn't communicate with others at all, he yelled randomly, he did all the things that alienate you from other kids. So tactless kiddo me saw him and heard the word and went "Like hell that's me!" and refused to let the term be used to describe me.

I realise now this wasn't particularly kind to him, and it wasn't very helpful for me either. If I had accepted the label a lot earlier, it probably would've helped my understand why I do a lot of the things I do.

Everybody's all "Jerry's old and feeble" till they see him run down a skyscraper and hijack a helicopter mid-flight.
BonsaiForest Since: Jan, 2001
#2888: Apr 14th 2018 at 6:52:34 AM

I know what you mean. In high school, there was this girl who was very much "more autistic" than me. In fact, at the time, I knew very little about what autism was, so I actually failed to see the connection between my condition and her behaviors, which were not subtle.

What were the differences and similarities between you and this other autistic kid you knew?

Murataku Jer gets all the girls from Straya Since: Jan, 2015 Relationship Status: Who needs love when you have waffles?
Jer gets all the girls
#2889: Apr 14th 2018 at 7:15:52 AM

It was a long time ago, so it's hard to remember clearly. I know some thjngs were similar (lack of eye contact, some degree of difficulty communicating with others) while other things were very different.

Everybody's all "Jerry's old and feeble" till they see him run down a skyscraper and hijack a helicopter mid-flight.
acuddle Inconvenience from Blagnac, France Since: Sep, 2015 Relationship Status: It's not my fault I'm not popular!
Inconvenience
#2890: Apr 19th 2018 at 12:33:43 PM

It's really weird and oddly inspiring that we are one of the few Troper Covens with more or less frequent updates smile.

Sorry for any inconvenience I've caused by ever writing here.
BonsaiForest Since: Jan, 2001
#2891: Apr 27th 2018 at 6:46:17 PM

Tomorrow movie for the movie group is my pick. It's Please Stand By. Dakota Fanning plays the role of an autistic Trekkie who travels across California to hand-deliver her fan script to Paramount Pictures.

If anyone here would like to watch it, it's at 8pm US Eastern time, tomorrow (Saturday US time).

It'll be showing at https://cytu.be/r/TroperCoven

Sorry for the short notice, but I didn't realize it would be chosen for tomorrow's movie until today!

BonsaiForest Since: Jan, 2001
#2892: May 23rd 2018 at 10:26:57 AM

Use of certain social strategies linked to anxiety in autism

In short, camouflaging - pretending to be normal by mimicking other people's behaviors - causes anxiety and stress.

Children with autism often have trouble understanding others’ thoughts, and some may compensate for this by creating scripts and using other learned strategies to navigate social situations. But that compensation comes at a cost: The children who engage in it become unusually anxious, a new study suggests.

What's more, the better their social mimicry, the higher their IQ, the better their executive function, and the higher their anxiety levels. This seems to indicate that the anxiety is coming from the social mimicry, whereas the ability to engage in high quality social mimicry comes from greater intelligence. At least, that's how I interpret this data.

The findings suggest that clinicians should try to identify children who compensate and direct them toward therapies that alleviate their anxiety as well as improve their social skills.

“If you can bring that anxiety down, you give people the opportunity to compensate more effectively because they’re not going through the stress,” says David Skuse, professor of behavioral and brain sciences at University College London, who was not involved in the research. “That’s where I see the scope for intervention.”

They also plan to ask people who compensate what strategies they use. One goal is to determine whether people with autism consider that the social benefits are worth the cost.

BonsaiForest Since: Jan, 2001
#2893: May 23rd 2018 at 10:38:11 AM

And now there's an article saying that autistic people are bad at detecting hints of lying. Like shiftiness or inexact answers. You know, like autistics themselves exhibit naturally.

For goodness sakes, we're the kind of people who look at evidence instead of body language and language hints, but this is meant to be a bad thing.

BonsaiForest Since: Jan, 2001
#2894: May 30th 2018 at 8:47:23 AM

Research Discovers Drug That May Help Children With Autism

This looks like it could be a legit breakthrough.

...suspected the cause of autism might be metabolic dysfunction, where the energy molecule ATP is “outside” cells. He researched more than two thousand drugs and found one that might help. That drug was Suramin. Dr. Naviaux tested one dose in a clinical trial of ten boys. Five got the drug.

Dr. Naviaux shared, “Children began to talk sometimes for the first time in sentences in their life.”

Boys who got Suramin had autism severity scores drop from eight-point-six to seven, the lowest point on the spectrum. They improved social, language and fine motor skills, and found relief from repetitive motions and fragmented sleep.

They went from low functioning to Aspie level? That sounds amazing. It makes me wonder if autism is something that is essentially always there, and additional factors affect severity level. I could be wrong, though.

The article also states that it'll take three years for them to be able to begin the final trials. (Currently, they're planning to test for safety.)

Katdo fnich my beloved Since: Apr, 2018 Relationship Status: Hugging my pillow
fnich my beloved
#2895: Jun 14th 2018 at 8:03:05 PM

Hey. I was diagnosed with Asperger's at a young age and informed of it at age nine. Last year I took an autism screening test and no longer met the criteria for diagnosis, but I still don't feel neurotypical. My condition mostly manifests in having a hard time putting thoughts and feelings into words, social anxiety (on- and off-line), a photographic memory of random things, and storing large amounts of useless trivia about animals and Pokemon. My principal special interests (although I honestly have never liked that term; it always sounded childish to me, like "Trains are little Timmy's special interest, right, Timmy?") are: animals and zoology (especially birds), prehistoric life, Pokémon, and Free!.

They/them or she/her
BonsaiForest Since: Jan, 2001
#2896: Jun 14th 2018 at 9:01:56 PM

Autism has been known to be undiagnosed in people who have learned how to fake the appearance of being "neurotypical". Like, they learned to stifle their need to stim, how to mimic the social behaviors others engage in at the seemingly appropriate times, how to fake the appearance of eye contact or make just enough of it to not upset people, etc.

So you've been undiagnosed? Can I ask a few questions?

  • When you socially interact, does a lot of it feel artificial, like you're just going through the motions or saying the right things at the right times without actually feeling any of what you're saying? (I'm not good at explaining what I mean, but I hope I'm getting the idea across. Also, some autistics don't bother to try to fake "normality" and thus for that reason don't have this problem.
  • Does looking people in the eye feel weird and unnatural to you? Like you really don't want to do it, or you just feel like you have to look away?
  • Are your senses seemingly unusually sensitive? (I can understand not knowing if that's the case. Like, as a kid, I never knew that the reason I disliked bright sunny summer days and preferred overcast days was due to being more sensitive to the light and heat compared to most people.
  • Do you have very few interests, and find it very hard to become interested in new things?
  • Are there a lot of things that seem obvious to everyone else, but somehow not to you? (Usually social things, or "common sense".)
  • Do you find it strange and uncomfortable if people do things like hug you or put their hand on your shoulder?

I've heard of people falsely diagnosed with autism because some traits were misinterpreted. Like someone who's a math prodigy who was socially behind - she's now super social and very popular. She said she never had limited interests, abnormal sensitivity to light/sound/touch/etc., difficulty with eye contact, etc., and now thinks she was misdiagnosed (as do I).

But there are also articles of people who were diagnosed with autism but later lost the diagnosis because they no longer met the visible criteria, due to having learned good social mimicry behaviors. A closer look at these people reveals they still very much have autism, but have learned coping skills, or are struggling to appear "normal". Like one boy who learned to hide his stimming with his hands by shoving them in his pockets. Look, no stimming! Totally doesn't have autism! Or another boy whose "special interest" is sports, and is obsessed with sports but unable to find interest in much else. Hey, a "normal" interest! Totally doesn't have autism! Etc.

Anyway, I'm saying either you were misdiagnosed, or you still have it but the test claiming you don't is flawed.

kkhohoho Since: May, 2011
#2897: Jun 14th 2018 at 9:35:39 PM

[up]Basically this. If you were already diagnosed with autism, chances are you've still got it, despite what the doctors say. If I were to get a diagnosis today, they might actually say I no longer have autism, purely on the grounds of how high functioning I've become. But even though I've gotten a lot better at a lot of things, underneath that, I know I'm still an aspie. Because as high-functioning as you can get, if you ever had any symptoms of autism, they never really go away. They just get a lot less obvious. And from the sound of things, you still have them to some extent. And if you do, that means for better or worse, you probably still have autism.

Katdo fnich my beloved Since: Apr, 2018 Relationship Status: Hugging my pillow
fnich my beloved
#2898: Jun 17th 2018 at 6:30:11 PM

[up] and [up] That's closer to what I was trying to say. I'm sorry for being unclear.

They/them or she/her
BonsaiForest Since: Jan, 2001
#2899: Jun 27th 2018 at 6:00:55 PM

Where Autistic Workers Thrive. The headline makes it sound like some kind of degrading sheltered workshop, but nope. It's about companies in the real world, including Microsoft, JP Morgan Chase, etc. hiring autistics due to, well, autism coming with skills.

Hans Asperger (yes I know he's a flawed human, but bear with me) wasn't kidding when he called autism a "combination of intelligence and disability that can't be separated".

More than 70 autistic employees have been hired in the past three years at JP Morgan Chase, where job performance results have been stellar.

“Our autistic employees achieve, on average, 48% to 140% more work than their typical colleagues, depending on the roles,” says James Mahoney, executive director and head of Autism at Work at Chase. “They are highly focused and less distracted by social interactions.

There’s talent here that nobody’s going after.”

Yeah, I'd say that chatting tends to not be our thing. :P

While job opportunities at Chase started in tech-related jobs like software engineering and code writing, the categories have expanded. Today, openings for personal bankers and problem-resolution specialists are filled, with the highest-level autistic employee brought in at the vice president level.

Managers are trained on how to work with the employees, who may not pick up on social cues and might start talking at inappropriate moments. Lessons include learning to be literal in descriptions, to give concise feedback, and to avoid asking open-ended questions.

Whaaaaaaaat? An autistic vice president?! That sounds too good to be true, but I can see an autistic person having the skills to be in that position should they reach it. Wow. This is a company that's truly trying to use genuine autistic talent. I'm impressed.

Now this needs to become more common. It's growing slowly, but it looks as if some companies have figured out how to do it right.

Ashfire A Star Wars Nerd from In My Own Little World Since: Aug, 2013
A Star Wars Nerd
#2900: Aug 11th 2018 at 2:41:07 PM

Fellow tropers, I'm here to ask for a bit of advice.

I'm still feeling my way through this whole autism thing, wasn't diagnosed until my 20s. But I've come to realize that my main method of stimming is via picking, biting, and generally destroying my nails and the skin around them, sometimes to the point of bleeding. I'd really like to stop, but, well, it's my main stim thing and it stresses me out to not do it. Because of the nature of my job, doing something like chewing gum isn't an option.

Has anyone ever tried to change the way they stim? Is there any good way to do it beyond "just stop"? Any suggestions for something to replace this particular behavior with?


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